This is where I answer questions from you. If you want my input on your labs, please look under “Contact” for my mail address and what I need of info from you. I need good info to be able to give good answers. Remember to cover name and birth date on your lab papers. You must always confer with your doctor. I can only share what I would have done in a similar situation.
Hashimotos without Anti-TPO?
6th of March 2021
So nice to hear from Moldova. I have never been there, but my brother has many times, as he lives part time in the Ukraine.
I don’t actually think there is such a thing as naturally low thyroid. Low thyroid is hypo thyroid. Healthy people have quite similar levels. Women have a little lower FT3 and young people have a little higher levels than older people. I hope you will look at my post on optimal levels. There you will see what are normal levels, based on 3800 healthy people, Optimal thyroid levels.
The “normal” ranges are not normal at all. I hope you will note these ranges and compare with the labs you will have shortly. I believe your FT4 will be way too low with a TSH of 50. I don’t think resisting taking thyroid meds is a good idea. Every day we have a low FT3 damages us. A ft3 much under 4,5 pmol/L is not a normal FT3. If they use other units in Moldova, you can find a units converter on the net.
So take meds if your levels are lower than FT4 around 40% or range and FT3 around midrange. A normal TSH is around 2 for a young person, 1,5 for a grown up.
The myth that one’s own thyroid stops producing hormones when one takes meds, is just a myth. You can continue to try to improve your own thyroid with Iodine and supplements. Remember that iron and magnesium are also very important. If your thyroid then starts producing more, or you convert better , you can decrease the medicine dose.
Many do not have side effects from T4 meds. And there are different meds you can try out. I think you must have some alternatives also in Moldova. If you don’t feel good on them, after giving them a chance, you could try NDT. If it’s difficult to get that in Moldova, you could buy Thai thyroid meds. See my post on meds, Our thyroid medicines. But do give the T4 meds a chance. You might do well on them. I am sure you need meds with a TSH of 50. And read under optimal levels what are good levels when taking T4 medicine.
Myxedema is really when one is very, very sick and hypothyroid. It will be difficult to function.
I suspect you and your mother both have autoimmune thyrioditis. It is typical that it blossoms during and after pregnancy. And for many, it will become a chronic condition. 90% of people with Hashimotos have Anti-TPO. So 10% do not. Anti-TPO and Anti TG are the two main Hashimotos antibodies. I would urge you to have TG or Anti TG tested. That is thyroglobulin or Anti thyroglobulin. If you have one of those over range, there is damage to the gland. You can read more about these tests here, for the thyroid newbie . There are also people who have Hashimotos who don’t have antibodies at all. This is a study on it, https://www.thyroid.org/patient-thyroid-information/ct-for-patients/vol-7-issue-9/vol-7-issue-9-p-10-11/. You see, that some patients have no antibodies. But when one looks at their glands with ultrasound, there is damage to it. These people have a milder form of Hashimotos.
Thyroid.org, writes, that antibodies destroy the gland. That is not correct. It’s mainly b and t lymphocytes that cause the destruction. So you can have damage done by b and t lymphycytes to your gland even though you don’t have anti bodies.
I don’t know if you can have an ultrasound in Moldova. But both you and your mother should have one. I suspect your mother also needs thyroid meds.
I hope this helps you. Iodine deficiency is a main contributor to hypo thyroidisme, also Hashimotos. So Iodine is VERY important. The 150 recommended mcg is too little. Testing iodine must be done in urine, not blood. You are maybe at a disadvantage, living in Moldova. When it comes to testing. But you are awake and aware, so I am sure you will do ok.
Nr.2: W/41 Iodine deficiency?
I told you to please have a look at my post on optimal levels, here, in order to see what are NORMAL levels. If you have, I am sure you have seen that your levels are not very low. BUT your TSH is a bit high and your FT4 is a bit low. You don’t have Hashimotos, as neither Anti-TPO nor Anti-TG are over reference. Though I have just read a study saying, some few people have AIDT without antibodies. But it is quite seldom. I don’t think this is the case with you. It’s very good news that you don’t have antibodies.
Instead I believe you suffer from iodine deficiency. Unfortunately, you forgot to answer my question about whether you supplement iodine or not. But I don’t think you do. Iodine deficiency is the main reason for AIDT. but it can take a long time to get to there. I hope you will read my post Iodine for beginners. It’s a good thing to test for iodine deficiency. A 24 hours urine test would be best, next best a urine spot test. Serum is no good. But read up on iodine and symptoms, and see what you think. Your FT4 should be around 40% of range, and your FT3 could be a little higher. If I am right, the iodine def would give symptoms in itself, as well as making your thyroid levels a little low. I actually had very dry skin, very brittle nails, did not sweat, pale, very tired in the upper back, having fibromas in breasts and uterus even though I had optimal thyroid levels. Some people claim, iodine deficiency symptoms are just thyroid deficiency symptoms. These people must believe, that the thyroid is the only organ in the body that needs iodine. This is not the case.
The other issue I want to address, is your very restricted diet. If this means, calorie restricted, this is the worst thing you can do. The body will go into save modus. In the first couple of weeks, the body produces a lot of reverse T3 . This is to get FT3 down to save on energy. That normalizes, but FT3 will stay low. A low carb diet will be much better for you, I think. I like Kris Kresser on this. Have a look at his blog.
You ask about NDT. In general, if you feel my iodine theory are correct, I would give that a few months, and test my thyroid levels again and see. If the TSH then still is a little elevated, then try a little T4 medicine and see if that helps. But don’t stop the iodine! You really don’t need medicine that contain T3, you convert very well. It is at 0,32. That is a very healthy conversion. Some people, myself included, have side effects from the synthetic T4 meds. But don’t worry about that before it happens. If you don’t like the most co.mmon T4 meds, you can try Tirosint But one step at a time.
You need some B12 and folate. B12 can be at 1000. Mine is. Both of these are very important for iron uptake. Your Vit D could be higher, as could your ferritin. I am not a believer of very high ferritin though. But if you menstruate, it should be higher than this, Iron is actually very important for the thyroid function as well. Your selenium needs to be high, it can actually be a little over reference, at 3 ng/dl say some Norwegian scientists. 3,5 ng/dl is toxic. Your zinc also needs to be good. So a restricted diet is NOT a good idea.
I hope this helps you,