This is a fixed post where I comment on things I read or observe. Where I share some thoughts and maybe recommend some things I like.
Getting and giving advice in Facebook groups, 0801 2021.
Being a member of thyroid Fb groups can be a great help. One can learn a great deal, as well as ask for and give advice on one’s health and well being. One can get help, but one can also be misled. There is a lot of bad advice out there. Many don’t feel they have to know a lot on thyroid issues to advice others. So always keep that in mind. But it’s not always easy to give advice either. As people often don’t understand what info to provide in order to get good advice.
I think that when asking in a thyroid group, almost regardless of what one asks about, it is good to provide info on one’s thyroid status. So often things tie into that. The better your info, the better the answers will be.
These are the things I find very important:
Lab results, as recent as possible
When in the day test is taken
Whether or not you take thyroid meds. If you do, what meds and how much.
Now people have a chance of assessing your situation. Why is time of day important? It’s because TSH falls over the day, it’s much lower in the afternoon than in the morning before 9 AM. So if you test at 3 PM it might look like your TSH is ok, whereas it in fact was too high earlier. It’s the morning TSH that is the standard.
Whether or not you take thyroid meds is of great importance. And also what kind of meds you take. As optimal thyroid levels will vary depending on what meds you are taking. You can read my take on that here
When people giving advice don’t have this info, there will be a lot of confusion and back and forth. I just read yesterday, in a group. Someone asking advice for being cold. No additional info given. After being asked for labs, one year old labs were posted. But no info on medicine or doses. She got the advice, she needed T3. But how could the advicer know this? Ft4 was very low. Ft3 was also low. TSH was around 1. First of all, if test was taken in the afternoon, that could explain the TSH. But if taken in the morning, there would probably be some pituitary issues, as Ft4 and FT3 were low. Secondly, when one doesn’t know anything about meds, one cannot say anything about meds. The person might need to start taking T4 meds, she might need to increase T4 dose if on T4 already. Only if already on T4 meds and on a sufficient dose, and FT3 was still too low, would the advice on taking T3 be correct.
So you see, knowing these things is all important. Some accuse me of being dogmatic when it comes to thyroid levels. Yes, I am dogmatic in the sense that I believe no one can have a FT3 level under what a thyroid healthy person has, that is 4,7. Men need a little higher and so do young people. Many women also need a higher FT3 than this, this is only meant as the lower limit. I don’t think anyone can do well and be free of symptoms under this level. But over that level, there will be a lot of individual variation. Where each and every one must find what level they feel optimal on.
As I said, Facebook can be a great help. But there are also many negative aspects to Facebook. I won’t go into all the stuff about being used by Fb in order for FB to make money and power. But more all the unpleasantness on FB. There are a lot of admins and moderators on power trips. And Fb in itself appeal to the ego in us, draws out our worst sides often. It steals our time and energy, and we can often feel bad after a session on FB. At least, that is my experience. So I think it is important to keep it in moderation, and if you can, keep a distance. Friends on FB are not real friends, they won’t be there for you. It is a superficial world. If you are a sensitive soul, like me, it’s not the best place to be. I try to limit my stay as much as I can. And when I do get sucked in, I often feel drained by it. So be aware of what it does to you.
Be well, Liv